During my six months of chemotherapy, I learned and discovered a few tips and tricks for better enduring this terrible period. In today’s post, I’d like to break down some of them and pass them on as possible advice for potential patients who, by some miracle, found their way to my blog. And, of course, you can also see it as a look into a patient’s life and the things that can make their life a little more pleasant.
Again, I have an important note before I start. Of course, there’s a countless number of cancer types, chemotherapy regimens, and people, so I don’t want my advice to sound like definitive solutions. These are things that worked for me and that I read about on forums focused on lymphoma patients, so it’s definitely not general and doesn’t apply to everyone. Even so, I hope that at least some of it is general enough and that every reader can take something away from it.
Give your body everything it needs to recover
The changes that chemotherapy brings are unimaginable at first and hard to come to terms with. I tried to write down the most important ones in my previous post, Bestiary of side effects. But I also found various activities and tricks that helped me deal with them a little better.
Hydration is the most important thing (and so is your diet)
Getting enough fluids is probably the main thing you’ll read about everywhere. In oncology communities, it’s often said that you have to pee out the cancer, and it’s true. Drinking enough makes it easier for your body to get rid of the “medicinal” chemicals and, in better cases, some of the dead cancer tissue that’s gradually being flushed out. I always had a problem with staying hydrated, but a few days before and especially after chemo, I really tried to drink at least one and a half to two liters of water a day. It helps with everything: headaches, fatigue, digestion, mouth sores, and even nausea (especially if you’re well-hydrated before the infusion). It also makes life much easier for your kidneys and liver, which are busy filtering out the toxic parts of the medicine, and you can reduce the risk of future damage to them.
It’s also crucial for your body to get enough nutrients to help it repair itself as quickly as possible after the chemotherapy tears down the cells. Of course, your diet should be healthy and balanced, as it always should be, but anything counts, especially in the first few days after the infusion when you feel sick and it’s hard to get even the smallest portion down. During this time, I especially recommend light meals that aren’t too greasy, salty, or spicy. And don’t stress if you gain weight. Your main job right now is to survive the treatment; there will be plenty of time to worry about beauty standards once it’s over.
Paradoxically, try to avoid your favorite foods
Our brains are really great at creating associations, which, unfortunately, is something you’ll quickly discover with chemotherapy. At first, it sounds like a great idea to surround yourself with your favorite foods to cheer you up during those horrible moments. But after just a few days, you’ll quickly start associating these formerly beloved foods with all the unpleasant feelings around them and begin to hate them. This, unfortunately, happened to me with several good foods and our favorite recipes, and it’s a shame I didn’t know about it sooner.
Eat a variety of things
This is another way to avoid bad associations while still enjoying good food. During the good times, try to cook brand new recipes, during the bad ones, don’t be afraid to order food from a restaurant if you can afford it. Similar advice applies to drinks, if you’re sick of a certain drink, try another one or one you’ve never had before. During treatment, I became a big fan of smoothies made from various fruits combined with juice, which gave it a lot of variety and didn’t allow me to associate smoothies in general with nausea, because they tasted a little different every time.
Try to sleep as much as possible
I understand that this advice can be hard to follow, stress, chemical changes, and body aches can cause sleep problems. Personally, in the last few months of treatment, I would wake up about 3 times a night, and it was very hard to fall back asleep — I usually slept at least two hours less than what I actually spent in bed. Even so, I tried to sleep as much as I could, at least the classic eight hours. The first few days after the infusion, I’m able to spend a good twelve hours in bed. I feel sick all day anyway and have nothing better to do. Sleep is not only a great method of recovery, which a chemo-torn body really needs, but it’s also a wonderful way to fast-forward through time and not have to experience the most unpleasant hours. The more sleep, the better.
Take medication when you need it
Before my diagnosis, I was always a hero when it came to non-essential medication. I would only take Ibuprofen and Paracetamol when it was truly the worst, and I generally avoided them. I never used nasal spray much either, for fear of getting addicted, and I generally always refused all sorts of medicines that could actually make me feel better. But chemotherapy is something else entirely. For nausea, I had two medications, Metoclopramide Accord and, for worse cases, Ondansetron Bluefish, and it’s really important to take these as soon as you feel the first hints of nausea. The same goes for medications for digestive issues or even muscle and head aches. Catching these things early is crucial, because otherwise your brain will once again develop stronger associations between the treatment and all that pain, and you’ll end up like me, unable to go to the last few infusions without anxiety medication.
How to spend your free time
After starting such an intense treatment, your life changes overnight to be unrecognizable. Things that you enjoyed and that brought you joy and energy are suddenly so demanding that it’s unimaginable to go back to them. It’s a sad realization, and it’s perfectly okay to grieve your old hobbies, but it’s not the end of everything. There are still plenty of things you can do during chemotherapy, and it’s nice to discover new ones and give them some of the free time you suddenly have.
Find some passive entertainment
Some days, it’s just not possible to do any truly active activities, but that doesn’t mean you have to lie in bed or on the couch all day and stare at the ceiling. Try to think of all those TV shows, movies, documentaries, or YouTube videos you’ve wanted to watch for a long time but just didn’t have the time for. It’s also great to rewatch some of the shows you saw a long time ago and can barely remember, but you know you liked them. Books are great if you can focus on them with chemo brain, audiobooks are also a good alternative. If it’s your cup of tea, video games are a great option for lazy days, especially if you have a lot of new games in your virtual backlog like me. The time has finally come to give them some attention.
Find some light exercise if you can
However, it’s not a good idea to just sit or lie down throughout the treatment and let your muscles atrophy. Any movement is good, even just walks or some light yoga. I was sometimes happy with just yoga specifically for cancer patients, which you can find plenty of videos about on YouTube. I was lucky that my treatment had some good weeks where I was able to do more active things, so if I wasn’t feeling bad, I went to the gym. My workouts weren’t intense, I exercised with light weights and definitely not to failure. But even that little bit helped me immensely with muscle, neck, and back pain. Unfortunately, movement is really important for health and overall well-being.
Of course, always ask your doctors first if your chosen sport will be safe for you. My team, for example, forbade me from doing any cardio due to the impact of chemo on the heart, so I wouldn’t stress it even more. I can’t say I complained too much about that decision.
Take it as a chance to try new hobbies
All that newfound free time presents a lot of opportunities to try something new. It could be an old hobby you stopped doing for some mysterious reason, or a brand new one you’ve always wanted to learn. And don’t be afraid to switch between them. Your brain doesn’t work the same way during treatment as it did before, so it would be unnecessarily painful to try to stick with something even if you’re not enjoying it anymore. The main thing is that it should be fulfilling, even if it’s just for a little while. You can read about my attempts to learn new things in my previous post, Gallery of my creative attempts, where you can see that I also jumped between activities very often and didn’t stick with any for long. And that’s perfectly fine.
When you feel good, go outside!
Walks are a savior for a bad mood. Sometimes, even when you don’t want to, try to force yourself to do it, take a stupid walk for your stupid mental health. Even if it only lasts a few minutes, it will be beneficial. And it’s ideal to take someone close with you and have a good chat; good conversations are always had on such walks. Most of the ideas for my posts were born on these walks, including this one. We often go to the local cemetery, so maybe that’s why most of my posts are a bit morbid and about cancer, but that’s beside the point. The main thing is to move and let the sunshine and a nice new environment lift your spirits.
Even “bad” hobbies are good for killing time
This is probably one of my most weird and possibly controversial pieces of advice, but it really worked for me. You’ve probably heard of doomscrolling or brainrot, and if not, you’re lucky people. It describes the state of passively consuming content served to you by a social media algorithm, often TikTok, YouTube Shorts, or, in my case, Instagram Reels. For my grandmas and grandpas who sometimes look at my blog, these short videos without any deeper meaning can pull you in for several hours, and when you’re done with them, you don’t even remember what you were watching for so long. It’s all designed to eat up as much of your time as possible and keep you on the platform for as long as possible.
It all sounds terribly unproductive and addictive, which is true if you have better things you can do with your time. But I’ve found that it’s very useful for those moments when you really can’t do anything but suffer and wait for it to end. For me, the main example was during infusions. The hospital caused me crazy nausea towards the end of my treatment. I’d feel instantly sick and just waited all those hours to get out and collapse at home. But when you have this usually unhealthy option to skip a solid amount of time and not remember much of it, suddenly it’s not such a bad thing. I’m not saying everyone should try it, but it’s something that worked pretty well for me. Try at your own risk.
Relationships and Socializing
Ideally, relationships with family and friends should be the one thing that doesn’t change and remains a constant rock of support that you can lean on during this terrible time. However, sometimes even this changes, being around a cancer patient can unfortunately be mentally exhausting and depressing. Even so, I still think that social support is one of the most important things for surviving chemotherapy.
Lean on your loved ones
Chemotherapy is really hard to get through if you’re doing it alone. So don’t be afraid to lean on your support system. When you’re feeling bad, complain. When things are going well and you’re having a bearable or even good day, tell them about it too. And if there are some things you don’t want to burden your loved ones with, maybe try writing, whether it’s a public blog or a private journal. The main thing is to have some way to vent both the bad and good experiences and not bottle them up.
Don’t be “the friend with cancer”
I’d also like to mention that it’s very easy to get labeled as the friend with cancer, which leads to old friends treating you completely differently, and then you feel like everything has suddenly changed. So don’t forget your hobbies and all the other things that make you an interesting and pleasant person and a good friend. Still talk to your friends about ordinary everyday things, your and their favorite hobbies, and the little problems they can relate to. It will help you feel more normal. Cancer doesn’t completely control you, so don’t let it!
Come out gradually
When you first start telling your family, close and distant friends, and the general public about your diagnosis, you’ll probably suddenly be overwhelmed with a bunch of kind and empathetic messages about how you have to stay strong, that it will all pass soon and everything will be okay, and that if you ever need anything, you should reach out to them and they’ll take care of it. It’s a very nice feeling, even if the reactions can sometimes be weird, whether too pitiful or way overly optimistic and positive, it’s great to know that so many people are thinking of you.
However, a lot of that support quickly fades. People have their own lives, and sometimes it’s hard to understand how long chemotherapy can last (mine was for six months, and it’s one of the shorter versions). Messages are frequent, kind, and thoughtful at the beginning, but in my opinion, it’s a bit unfair to expect people to remember after a few months that this person is still going through the same thing and it’s not getting much better; they’re just balder now and don’t have eyebrows and eyelashes. On the contrary, it’s quite understandable. Life changes quickly when a person is healthy, and it’s hard to put yourself in the shoes of someone who’s going through the same painful cycle for six months straight.
That’s why I think it’s worth making these diagnosis announcements gradually. This way, you can enjoy the well wishes and kind thoughts of others for a longer period of time. I announced my health status to the wider public (close friends on Instagram, where I added at least 70 people for this purpose) only after three months of treatment. Even today, after six months, there are a lot of people who don’t know about it at all unless they’ve heard about it from friends. And I don’t mind at all; at least I have plenty of new people to discuss it with.
Don’t be afraid to use your new ace in the hole
Let’s face it, cancer is a great excuse for everything. People are suddenly obligated to be nice to you and do things for you they wouldn’t normally do, and then they can feel like they’ve done a good deed. Chemotherapy, as I’ve mentioned several times today, is a terrible thing, so you definitelly deserve this card. Don’t be afraid to use it, no matter how weird it sounds, it’s one of the very few good things about cancer.
And don’t be afraid to let people help you. This period is incredibly difficult, and even a small kindness can change the mood of your whole day. It’s quite understandable to feel like a burden to the people around you when you suddenly shift into survival mode, but if the people around you love you, they’ll also be happy to help and do some good deeds for you. Try not to feel bad about it, it won’t last forever.
Mental health
This is one of the things I still haven’t quite figured out myself. The psychological side of chemotherapy is hard to describe and probably the most individual, so it’s difficult to give advice on what to do when you feel bad. Even so, I have a few things that helped me get through the worst moments.
Don’t feel bad for doing nothing all day
Sometimes there are just days when you can’t do anything. Whether it’s due to physical pain and nausea or psychological exhaustion and a loss of motivation, which chemo also loves to cause, some days you just have to survive, to kill the time with the knowledge that tomorrow might be better. Don’t compare yourself to your former self, because soon that person will seem like a completely different personality in every way. Allow yourself not to be running at 100% all the time and prepare for a lot of unproductive and boring days. It’s all just for the purpose of survival, and if you’re managing that, you’re doing a great job.
Try to keep a record of things
Even if you’ve never tried something like a journal or mood tracker, I think it’s very useful here. It gives you a bit of perspective on the whole situation, and you might find that it’s not all just pain and suffering, but that there are good days too, which make it all worthwhile. Furthermore, it’s also helpful to keep a record of side effects and things you want to discuss with your doctor at your next appointment. Keeping a record of things is nice, and I think more people should do it.
Take it one hour at a time
At the beginning, the treatment can seem unimaginably long. In my case, I was lucky enough to only have six months with a very high chance of a complete cure, but even so, it felt endless. So, especially at the beginning, it really helped me to focus on each day as a single unit of time that I was currently living and not think about all the ones that were still ahead of me. I remember being at my third infusion out of twelve, and it felt like so little for all the trouble I’d already endured. But my partner came up with a great thought: that I would never have to experience a third infusion again. It’s a simple thing, but sometimes it’s hard to admit it to yourself. The next one would be the fourth, then the fifth, and then I would be halfway there. It helped me a lot to focus on the relentless march of time, which this time, unusually, was bringing good things. Everything ends someday, but that also applies to the bad moments that we all go through. It’s a nice way to think about it.
In conclusion
I think that’s all I could quickly remember right now. Most of it is about accepting your new, previously unknown situation, learning to navigate it, and not letting cancer control you. Even if it sometimes seems like the opposite, you still have control over how you act and how you react to things. And don’t forget to be kind to yourself. You’re amazing just for being able to fight something like this and maintain at least some of your mental health and well-being. You are strong, and I’m sure you will get through this and come out on the other side even stronger and with a different outlook on life. And that’s something great.